Genetic Information: Legal and Law Enforcement IssuesNancy Lee Jones, Alison M. Smith Nova Publishers, 2005 - 36 páginas On June 26, 2000, in a special ceremony at the White House, the completion of the 'rough draft' of the human genome was announced. This milestone, which has been compared to the discoveries of Galileo, and other advances in genetics have created novel legal issues relating to genetic information. The Human Genome Project, with its goal of producing detailed maps of the 23 pairs of human chromosomes and sequencing the three billion nucleotide bases that make up the human genome, has been instrumental in the identification of genes implicated in various diseases including glaucoma, colon cancer, and cystic fibrosis. With the identification of these genes comes the hope of genetic therapies to cure disease but this scientific accomplishment is not without potential problems. For instance the presence of a cancer causing gene may indicate a predisposition but does not guarantee that the person will contract the disease: How should an employer or insurer respond? The ethical, social, and legal implications of these technological advances have been the subject of significant scrutiny and concern. This new book discusses federal law, state statutes and legislation related to genetic information. |
Contenido
| 5 | |
Executive Order | 7 |
The Americans with Disabilities Act | 11 |
Privacy | 21 |
State Statutes | 25 |
Legislation in the 106th Congress | 26 |
Legislation in the 107th Congress | 27 |
Legislation in the 108th Congress | 29 |
Index | 33 |
Términos y frases comunes
107th Congress Accountability Act amendment Americans with Disabilities based on genetic Bragdon colon cancer Cong coverage of genetic definition of disability detailed discussion Disabilities Act discrimination and privacy discrimination based discrimination in insurance disease EEOC's employees employing entity ERISA executive order February 29 federal Francis Collins gene therapy genetic defects Genetic Nondiscrimination genetic services genetic testing group health plan guidance Health Insurance Portability HIPAA HIV infection Human Genome Project Human Genome Research Huntington's disease impairment that substantially includes genetic information insurance and employment Labor and Pensions laws Legislatures Genetics Tables major life activity Medical Privacy Michael Kinsley Murphy Nancy Lee Jones Nondiscrimination in Health offer of employment Portability and Accountability potential predictive genetic information privacy protections prohibit discrimination prohibited genetic discrimination protected genetic information Protecting Against Genetic receipt of genetic regarded relating to genetic statutes substantially limits Supreme Court susceptibility to colon third prong United Parcel Service Workplace
Pasajes populares
Página 12 - disability" means, with respect to an individual (A) a physical or mental impairment that substantially limits one or more of the major life activities of such individual; (B) a record of such an impairment; or (C) being regarded as having such an impairment.
Página 18 - Murphy, the plaintiff was not found to be regarded as substantially limited in the major life activity of working. The main point of this rather complicated discussion is that making the case that one is regarded as substantially limited in a major life activity, particularly the major life activity of working, is likely to be difficult.
Página 18 - In testimony before the Senate Committee on Health, Education, Labor, and Pensions (July, 2001), William E.
Página 8 - To limit, segregate, or classify employees in any way that would deprive or tend to deprive any individual of employment opportunities or otherwise adversely affect his status as an employee because of his race, color, religion, sex or national origin.
Página 1 - Health, observed: while genetic information and genetic technology hold great promise for improving human health, they can also be used in ways that are fundamentally unjust. Genetic information can be used as the basis for insidious discrimination. . . . The misuse of genetic information has the potential to be a very serious problem, both in terms of people's access to employment and health insurance and the continued ability to undertake important genetic research/ Genetic Discrimination is a...