« AnteriorContinuar »
• Seek esublishment of adult day Car and home health services. De. velop directory of doctors who accepi Medicaud and Medicare Payments for treatment of people with disabilities. • Provide roll-free legal advice about legal maners relanng to nonacceptance of Medicaid and Medicare of refusal ol reatment to disabled consumers. • Advocate for program changes to facilitate more timely and consistent payment of Medicad and Medicare • Advocate for cooperative living as. rangements with shared attendant care for those who need help. • Consumer groups need to present need for anendant care and cost effec. Oveness data to state legislatur. • Support national groups lobbying for national anendant care programs.
Housing Affordability Availability, and Acressibility Sin survey items related to the afforda. bility, avalability, and accessibility of housing have been identified as major problems by 4.127 consumers in 12 surveys. They received an average importance rating of 86 percent and an average satisfaction raung of 37 percent. Consumer Idennified Dimensions: • There is an extreme shonage of 2. cessible, affordable housing for people with disabilities. • Eligibility requirements and regula. tions keep some disabled consumers. especially the nonelderly who live with family members or anendants, from living in public or subsidized housing • Builders do not comply with exist. ing laws, where laws exist. that re. quire a certain percenuage of accessible unius • Builders are unaware of laws. 25cess codes, and modifications neces. sary for xcessibility. • Managers and directors of public housing are unsware of, and ohen indifferent to the needs of disabled lenancs. Consumer-Generated Alternanves: • Talk to owners if the manager is uncooperative. • Disabled and low-income people should lobby social service agencies for housing assistance. • Disabled consumers should educate Medles Portaal nod Publike Inbradoo Three survey items relaied to media portrayal of people with disabilities and then access to information about services, benefius, and programs were selecred as problems by 7.547 consum. ens in three surveys. The items R. ceived an average importance rating of 81 percent and an average sausfaction rating of 39 percent. Consumer.Idannfied Dimensions: • The media do not provide enough information about what is avulable for disabled ciuzens. • The media portray people with disabilities in a negative and unrealisac way. prefemng the sensational or pia. ful to the everyday and human side of disability. Consumer-Generosed Alkemarives: • Consumer groups should bring a cessibility and indepenukent-living is. sues to the ancation of the press. • Consumers should monitor coverage of disability issues. • Consumers should educate the media to correct negative portrayals and terminology • Consumee groups should meet with service providers about developing a directory of services and programs for people with disabilities that could be disseminated through the media.
cal professionals in the dignified.
city officials on housing needs of
lasunare for Auto, Like, and
Public Access Issues related to safe xcess to public places, including availability of curd cuts, accessible encances, and snow removal, have been selected as major problems. Two related survey items were chosen by 204 consumers in two different surveys, with an average importance rating of 81 percent and an average sausfaction rating of 48 per cent. Consumer-ldenafied Dimensions: • Disabled citizens are forced to stay home or use the sorzet, because curb cuts and sidewalks are absent or inadequate, or in some instances. snow is not removed prompuy. • Many public buildings are locally inaccessible of technically accessible with inadequate or unsafe access. Conswner-Generased Allemanues: • Discuss among disabled consumers key areas that need to be made accessible.
Insurance companies discrminale
• Make up an annual prionry list of
lasurance for Health Care
Educare consumers about supple.
Social Services Four survey items related to informa. tion social agencies provide to coosumers about services and legal issues were selected as major problems in six surveys. A total of 3.581 consumers re. sponded to these questions, with an av. erage importance raning of 88 percent and an average sausfænon rating of St percent Consumer Idennfied Dimensions: • Social service agencies fail to inform disabled consumers about all services available to them through their own agency, other agencies, or the community. • Benefics of services from one agency can limit bencfics or services from another agency • Most social service agencies are un. aware of services available at other agencies. • Disabled people are referred from one agency to another, ohen encoun. kenng agencies unable to serve them or refusing services. • Forms and policies of social service agencies are conhusing. Conswner-Generated Allemarives: • Organize a consurner group to Rs. view forms used by social service agencies.
form a consumer nerwork for information and referral. • Create more support groups for mutual assistance. • Provide corrective feedbaci and is formauon to social service Yencies tha fal to inform clienus about bene rics to disabled consumers. • Provide social service agencies wich training on benefics available to disabled consumers. • Consumers should demand that VR cases be reopened, if they have not been fully informed about all benefits
fordability of utility bills was ickenofied as a major problem in four sur veys. A loul of 1.611 consumers answered this survey item, with an incrage importance raning of 89 percent and sa average sosfechon rating of 24 percent Consumer-ldkennpied Dimensions: • Disabled consumers on a fired income cannot afford inconsistent and high utility bills. • Because of their medical needs. many disabled consumers cannot sur. vive without water. gas for heat, and electricity to operove their equipment. Conswner-Generated Aliemanves: • Obtain help to establish programs for weathenzation. • Encourage landlords to weathenice unils • Educate landlords and disabled homeowners about a credits for weathenzing and solar insullation, • Encourage consumers to join innualized level payment plans. • Consumer groups should maintain a list of agencies that help pay utility bills. • Call local consumer leurs office for help of uulities are shut off. • Consult local phone company about discounts for disabled consumers. • Wnie elected officials de sending problems wich utility bills and ask for kegislative solutions and assistance programs.
This report represents the comments and suggestions of thousands of Amer icans with disabilities. They have idenofied specific community features that inhibui independent living. including inadequate job opportunities. job dis. crimination, insufficient accessible and fordable housing. inaccessible public places, and unavalable and unaffordable service opoons. These community problems are counterproducDve to achieving society's goal of inde. pendence.
The common concerns audined here frame an agenda for public. prvak. and self-help injoaoves. These consumer generated alemaoves feature many precocal steps that can be taken a boca. sease, and national levels. Taken la gether, these ispues and opoons pose a challenge to all who believe than jusoice requires equal opportundes to achieve independence. I
Transporiadoa: Availability and
ble mainline transportation for those
Common Concerns of Disabled Americans:
Issues and Options
Yolanda Suarez de Balcazar
This publication was prepared by
3111 Haworth-BCR Lawrence, Kansas 66045
Funds for this publication were provided, in pars by a grant to the University of Kansas from the National Institute on Disability and Rehabilitation Research (NIDRR) Grani No. G008006928
Assistive Devices: Affordability and Availability..
3 4 5 5 6 7 8 9 10 10 12
14 16 17 18 18 19 20 22
Appendix 3 Consumer Ratings of Importance and
Satisfaction by Concerns Category, Survey